Recommendation: Ten Things Every Child With Autism Wishes You Knew

Ellen Notbohm, the mother of two children, one of whom is on the spectrum, has a number of books out about children on the spectrum, acting as the voice for her son. One of them, Ten Things Every Child With Autism Wishes You Knew, is now in the ASNL Barbara Hopkins Library. As I was early to Social Club today, I noticed it and decided to read it to see whether I agreed with what was in the book.

My personal answer? It’s excellent. There are some minor things that I disagree with (noted below), but the vast majority of it (and every one of the “Ten Things”) involves points that I am in full agreement with. It’s also both well-written and quite respectful of autistics. (Including the fact that although she uses “child with autism” throughout, she both explains why she prefers not to use the term “autistic”, and also that a number of children, when they grow up, prefer to be referred to as “autistic” rather than “adult with autism”.)

Click for my specific thoughts

Let’s Talk About: Storybooks! Post #1

So, here’s the thing. When I was at Social Club this afternoon, our facilitator mentioned that she’d been looking in the ASNL Library for resources – storybooks – to help some parents explain certain things to their children. Unfortunately, she wasn’t too happy with what she found – some she liked the wording but not the illustrations, some she liked the illustrations but not the wording, and some were “yuck”.

Because we’re a pretty creative group, she came up with the idea that maybe we could go ahead and write (and illustrate) some of these missing resources. We all loved the idea. So, one of the first things we have to do is research – and I’m turning to you. Autistic adults – what (of the subjects listed below) would you have wanted to read to help you as a kid? Autistic teens, what about you? Parents, can you ask your kids? Do you have any suggestions for wording? Are there any other subjects you think would be helpful? And if we’re satisfied with what we produce… would you like us to publish them?

Read on for details!

World Autism Day 2014

So… it’s April 2nd. World Autism Awareness Day. Everyone’s posting about it. Everyone has their own opinions on the differences between “Awareness” and “Acceptance”, and what that means for those of us on the spectrum and our allies.

Read details of what today means for me

Behaviour is Communication; Violence is Behaviour

There have been a lot of discussions around my blog “circle” about Kelli and Issy, and what violence from autistics actually means, and what are some ways to deal with it (both from the autistic and the parent point-of-view). In fact, as I believe I mentioned in yesterday’s post, there are some specific posts on other blogs about the subject I want to recommend. I also want to talk about my own experience (minor) with violence in myself, as requested by Ariane in her post in Emma’s Hope Book on Tuesday (see below, it’s one of the ones I’m recommending you read).

Continue on to see more of what I’m talking about with the title.

Meltdown of Frustration

Well, it’s happened. The meltdown (at least the first of them) that I figure I’ve been moving towards since December at the latest has finally expressed itself. And I’m pretty sure that at the moment, I am non-verbal – or maybe even soundless.

And every time I think the tears have stopped, they just start up again.

Continue to read on about my meltdown and what caused it

Recommendation: Musing’s Survey #1

Okay, Musing of an Aspie‘s “Take a Test Tuesday” has now changed over to “Take a Survey Tuesday”, at least for a month. I highly recommend them; the questions are asked by ASDers for other ASDers. The first one, now up, is about relationships – friendships, family, romantic.

So, what are you doing still over here? Pop over to her post and either fill out the survey on Survey Monkey, or answer in the comments!

😉 tagAught

Hyper-Awareness vs. Hypochondria

So, I had my monthly visit to my psychologist today, and we were talking about some of the posts I’ve made since my last visit (Feb. 15), including the hypochondria one. What she said was that she thinks it’s not hypochondria – which she considers to be a serious ailment where, to quote her, “you have a tic in your eye and think you’re going blind, or you have a pain in the back of your head and think you have a brain tumour” – but a hyper-awareness of physical sensations. She says that a number of the people on the spectrum that she’s dealt with (not all, but definitely most) have that hyper-awareness.

Continue for more exciting examples!

No: Guilty Feelings

A few weeks ago, Musings of an Aspie wrote a post about her “No” reflex, and how she needed to work on pushing her boundaries. A lot of us need to work on that, to avoid turning into recluses (or at least, that’s the worry my mother has constantly had for me, which may also be linked to my depression).

However, there is another side to things, and I had a dream last night which reminded me of it: Working on recognizing when we need to say “No”. Continue reading

Let’s Talk About: Insomnia

First of all, can I mention how glad I am to have found the online ASD community, someplace where I can tell people: “I can’t help it,” and be believed and understood. (Not to say my parents don’t believe me, but it’s really hard for them to understand some of this stuff, because of that Communication Chasm.)

So, this is going to be the first in a series of posts “Let’s Talk About”, which will look at some of the things I experience and invite people to join me in discussing them. And our first topic is insomnia, because it’s potentially linked to what happened to me yesterday (see Sensory Overload Fun (Not!)), and because I’ve been trying to deal with it lately.

Continue reading

Coping Mechanisms

Warning: Speculation post! No definite cognitive science here, I’m afraid!

Ah, coping mechanisms. Where would we be without them? Well, as a species, probably dead. Coping mechanisms are our ways of dealing with stressors in the environment.

So… I can’t remember whether I mentioned it on here or not, or maybe in a comment on another blog, but over the past several years (as in about 3-5 – essentially when I began accepting and understanding what it meant to be on the spectrum), I’ve become more (consciously?) aware of various sensory issues, emotional overloads, and needs. I’ve been noticing that I avoid eye contact a lot more than I (or my mom, in fact) thought I did, for example. Continue on….

Meltdowns and Control

Okay, not a long post. Hopefully. I have tasks I need to do before I can go to sleep, and boy, do I need sleep. But at the moment I’m a living example of how control of meltdowns can sometimes be detrimental, and I think I need to relay this while I’m in this state. Read on….