The Autism Society of Newfoundland and Labrador is holding a fundraiser for their library at the Chapters on Kenmount Rd. (just up from the Avalon Mall) in St. John’s, from 7pm to 9pm tonight. A percentage of the prices of all books bought during that period will be donated to the Autism Society by means of a Chapters/Indigo gift card, in order to help expand the ASNL Library.
Okay, the post I’m recommending is not actually called “Interrupting and Correcting”; it’s a series of 3 posts about the AS (read that as Asperger’s Syndrome or Autism Spectrum) need to be Right. But… reading through it? My first thought was, Mom, this is why I have such a hard time controlling my urge to step in with a correction when I know you’ve made a mistake.
Because as my mother would (correctly) tell you – that’s a major problem I still have. I can get by in social situations, for the most part. I learned early on that politeness and “shyness” are a good combo – and I do seem to give off the general vibe of “asexual” when meeting new people. (Or, at least, if people do flirt with me, I don’t notice, and don’t respond – I tend to draw in on myself when meeting new people as well….) But say something that I know is incorrect… and I have to almost bite down on my tongue (literally) to keep myself from making a correction. And still, about half the time, I don’t manage to stop it.
Now, I didn’t get the same type of bullying that the author of this post got – I was more inclined to be bullied because I was smart, and because I was a very tall, clumsy girl, in elementary school, and in high school, I was with people as smart as I was, so there wasn’t that kind of “that person has the answers” dynamic going on. But… being smart got me the respect of the teachers. And therefore their approval. And that mattered, because one thing I was shown in elementary school is that there are good adults out there who will do their best to protect you from bullies. And adults are more likely to believe you when you don’t feel well or can’t do something if they respect you. (Not always, but enough so that my analytical side could come to that conclusion.)
So, from Snakedancing’s blog, I give you:
- #Aspergers & Interaction: Being Right Pt. 1
- #Aspergers & Interaction: Being Right Pt. 2
- #Aspergers & Interaction: Being Right Pt. 3
Please note that the topic above is really the main topic of only the first post. The other two go into strategies to help deal with the need to be right.
(P.S. My planned post following up on Modes of Thought will be out – either tomorrow or later today, depending on whether you subscribe to the “day changes over at midnight” theory or the “day changes over after you fall asleep” theory. If the latter, it will be out tomorrow – this is what I say; if the former, it will be out later today – which is what the website says.)
So, I had this interesting dream last night, one that I thought brought up some issues important enough to discuss. So, despite the lack of statement in the title, this is actually a “Let’s Talk About It” post. As usual, I will welcome any commentary.
To explain the dream, we’ll have to go back to yesterday (plus a bit of back story), because I think something that happened then was what triggered it. (Note: Seriously rambling post because of it, but there are a few other points in there aside from the main one, so….)
So… it’s April 2nd. World Autism Awareness Day. Everyone’s posting about it. Everyone has their own opinions on the differences between “Awareness” and “Acceptance”, and what that means for those of us on the spectrum and our allies.
I recently re-read a post by Musings of an Aspie: Is there a Link Between ASD Motor Skill Deficits and Social Communication Difficulties? which she posted a year ago. She started out intending to look at ASD and dyspraxia – which is a developmental disorder that seems to involve problems with motor coordination… and sensory issues, and executive order functions. In fact, apparently autism and dyspraxia have so much of an overlap that people can be frequently misdiagnosed with one when they really have the other, or they tend to often end up as co-morbid (co-occuring) diagnoses.
For any fellow Newfoundlanders, there is a talk on the Disability Tax Credit on Saturday, March 8, 2014, at 10:30 hrs., at the Holiday Inn on Portugal Cove Rd. This applies to all disabilities, including autism, depression, physical and other mental and social disabilities. It should be useful, because there’s also the fact that if you qualify for the Disability Tax Credit, you are automatically qualified for the Registered Disability Savings Plan – which can be a huge help.
See the poster below!
Well, the Autism Society of Newfoundland and Labrador had their Adult Autism Group panel tonight. Unlike what I originally thought it was going to be, it wasn’t each of us (3) making a presentation on a topic; it was five of us having a discussion panel with three questions – one about the stresses of passing for normal, one about the school system, and one about creativity / imagination – as topics, and then open question time for the audience.
It went very well, I think. (So do my parents.) It was surprisingly enjoyable, and we talked about a number of things, including sensory issues, social issues, energy drain (spoons), teachers, special ed, writing, movies, music, visual art, Asperger’s and the DSM-5, disclosure, questions about what we feel when someone goes, “Oh, now I understand” after an explanation of autism, and so on.
I also had – for exhibits of my creativity – the memorial poems for my grandmothers, the 50th birthday poem for my father, two novels-in-progress (It Came From the Library being one of them), and my Earth: Final Conflict series Dreams, Memories and Truths.
I also got to meet one of the better-known autism advocates here in NL (he was the one who asked the question about disclosure), and that was a pleasure.
Had a great time!
Update Jun. 15/17: Updated all links to Unstrange Mind’s new website.
And we’re back again with Unstrange Mind, who is doing all of us the favour of going through the DSM-5 Autism Spectrum Disorder diagnostic criteria, and analysing it in terms of what it means both for those who are already diagnosed (even though we’re grandfathered in), and those who will be looking for a diagnosis. (Note: Frankly, based on her analysis and just what the criteria says, I fit even better in the ASD diagnosis than I did in Asperger’s! I may have said that before, but it bears repeating.)
Her analysis is not yet finished, but (as mentioned in the top note), I will continue to update as it progresses. However, I thought it was important enough that I want to start getting it out now.
Here we go:
- Autism and the DSM-5: Losing Your Diagnosis?: An explanation of the coming posts, and the fact that you don’t lose your diagnosis with the new criteria.
- Autism and the DSM-5: Diagnostic Criteria (Section A): Section A covers deficits in social communication and interaction.
- Autism and the DSM-5: Diagnostic Criteria (Section B): Section B covers restricted and repetitive patterns of behaviour (including interests).
- Autism and the DSM-5: Diagnostic Criteria (Section C): Section C covers the timing of symptoms. U.M. considers this section huge, because it recognizes that symptoms may appear different at different stages in life.
- Autism and the DSM-5: Diagnostic Criteria (Section D): Section D looks at how much of an impairment in daily living the symptoms cause.
- Autism and the DSM-5: Diagnostic Criteria (Section E and Severity Levels): Section E looks at other possibilities for the symptoms; severity levels are ways to measure the current severity of the symptoms in sections A & B (and they are to be measured separately, and are listed as fluid, potentially changing back and forth over time). Severity levels replace the “high functioning” and “low functioning” labels, which I suspect pleases a lot of my fellow autistics. It certainly pleases U.M. She has also posted the contents of “Table 2”, which lists the criteria for the severity levels.
- DSM-5 and Autism: Development and Course (Part 1): The first paragraph in the commentary section about the development and course of autism (there are seven, each one will be covered in an individual post).
- DSM-5 and Autism: Development and Course (Part 2): The second paragraph in the commentary section, this one concentrates on “regression” – which isn’t necessarily the preferred term, but is the one used by the DSM. U.M. illustrates this issue with some personal examples.
- DSM-5 and Autism: Development and Course (Part 3): The third paragraph in the commentary section concentrates on first signs of autism; U.M. again illustrates this issue with personal examples (making it real for people).
- DSM-5 and Autism: Development and Course (Part 4): The fourth paragraph continues the early signs of autism, referencing deafness and the fact that allistic children show some of the same repetitive and restrictive behaviours as are typical of autism, but not to quite the same extent (“[t]he clinical distinction is based on the type, frequency, and intensity of the behavior”).
More to follow as they are posted. This is a highly recommended set of posts, and I encourage everyone who has any interest in ASD and what the criteria is to read them.
AutistiCook has a stimming survey set up; it’s now got enough responses that it can serve as a resource for people, but it can always use more. The more responses and details, the better! I encourage people to fill it out; especially as it’s not “just” for autistic stims, but for any kind of stims.
The Autism Society of Newfoundland and Labrador is celebrating October as Autism Awareness Month. To do this, one of the things they’re arranging is a series of talks, incorporating subjects such as naturopathy, nutrition, etc. There’s only really one I’m interested in, however.
On Wednesday Oct. 30th, the Connections (Adult Aspies) Group is going to be having an “open house” (so to speak) panel; the topics are planned to include such things as sensory issues, anxiety, social issues, and available resources. At the moment, the plan is for 3-4 people to speak, and then have an “open floor” where questions can be asked.
The reason I’m particularly interested in this meeting is that I’m going to be one of the panelists speaking; my focus is going to be on sensory issues (with perhaps a bit of info re creativity and assuming competence thrown in). I essentially figure that if I want to be a self-advocate, I’ve got to start somewhere, and why not with something like this?
I have a basic plan of what I intend to say: intro to the fact that humans actually have seven senses, rather than just the five obvious ones; an explanation of proprioception and vestibular senses (to explain the sixth and seventh); and then an explanation of some of the issues that ASDers tend to run into when it comes to sensory issues – quick and succinct, but hopefully providing enough info that the parents (it’s likely to be parents, mostly, who attend) will understand a bit better what their children are going through. I intend to touch on hyper-sensitivity, hypo-sensitivity, the fact that one can have opposite reactions to different things in the same sense (I know someone on my blog circle, can’t remember who, loves spicy stuff but can’t tolerate the taste of mint), and hopefully mention a few potential coping strategies (including the fact that stimming is often a method of trying to cope with the overwhelming sensory influx that we live with). If there’s time (I’ll likely have maybe 15 minutes to talk), I also intend to mention the theories about how it’s possible that our impaired understanding of emotional and body language cues might actually be because of our sensory issues, rather than them being separate things that just happen to fall under the common umbrella of ASD symptoms, and also about the possibility that “emotional sense” is also a sensory input that we can end up overwhelmed by.
The thing is, I’d also like to provide some further sources for people to look into. I intend to have sheets to pass around with blog URLs, but if anyone has any blog posts specifically about sensory issues that they think might help educate people, and wouldn’t mind if I put those direct links on the sheet, could you please let me know? Also, if there’s anything that you think I should consider mentioning about sensory issues (whether I’ve listed it above or not), I would welcome your thoughts. There’s no guarantee that I’ll be able to include all of the suggestions (considering potential time constraints), but even just knowing what others think is important to mention could help.
Okay. First of all, this was not originally the next post I was going to write. I have an unfinished post about driving as stimming (which I’ve been meaning to finish and post for about three to four months now – mea culpa), and there are some other issues that I want to explore as well. But I went out for coffee with my local friend tonight, and we got to talking about some of the things we experience. One of them was the element of focus, and it ended up being (pun not intended) the focus of our conversation. And I thought it might be interesting to open up the dialogue to others as well.
I have two different “focus” modes: What I call hyper-focus, or concentrating so hard on one thing that everything else (including calls to come and eat dinner) gets blocked out; and lack of focus, where I’m lost and can’t decide what needs doing or what has priority. And a lot of things I’ve read about other autistics say the same thing. Especially if it involves one of our special interests (definitely hyper-focus), or if it’s something we’re not at all interested in (lack of focus).
The lack of focus element definitely seems to be linked to problems with executive function, and it’s quite possible that the hyper-focus is as well.
Musings posted on her blog on July 3rd a post about “interoception”, which she defined as:
describes our sensitivity to sensations that originate in our bodies
Her post concentrates on the issues surrounding the muting of interoceptive signals that is quite often a “Thing” for autistics, and the problems that can result from that (such as a serious infection, in her case, which could have been caught weeks ago if she had been aware of the sensation); and on the issues of alexithymia, which often mean confusing emotional states with interoceptive information.
In my response to one of the comments on that post, I linked the concept of interoception to the concept of psychosomatic symptoms; and this post is to explore that concept further.
[Note: This post and the next one (#SensoryIssues: Interoception & Psychosomatism) are linked in theme, so they will be posted closely together. Same day, at least.]
I don’t complain a lot about pain.
I’m sure some people (*cough* my family *cough*) will disagree, but… I don’t. Not when compared to what I actually feel, at least. I tend to feel a fair bit more pain than I talk about to people, partly because I don’t know how to say things, and partly because… well, see my hypochondria posts (links are below) for the details on how I feel about that.
Oh, if I have a nasty headache, or bad cramps, or I get a sensory “spike” (like when cutlery clashes together, or a child squeals in excitement, etc.)… then I complain. Or at least mention it.
Sometimes very obviously (aka covering my ears with my hands, holding my stomach), because I’m never sure how to convey the information and words don’t seem to be enough. I’m not always listened to (especially by my siblings; my parents are a lot more understanding, particularly lately, as we learn new stuff about the sensory sensitivities of autistics), so broad, sometimes exaggerated gestures have become my main effort to get across to people that I’m hurting. (Of course, this then results in people – *cough* my brother *cough* – telling me that there’s no need to do that, it’s not like it’s an issue. [Said after I covered my ears to try to deal with my niece’s excited squealing. I wasn’t trying to make her feel bad or anything; I just could not tolerate the pitch of her voice, and no one was listening to my requests to please be a bit quieter. </rant over>])
We’re not going to let the end of April stop us. Let’s keep on with the Autism Upsides! Here’s the Storify for May 2013, everyone; read and enjoy the positive things that are a good part of autism.
Today is Autism Positivity Day 2013, and the theme for this year is “1,000 Ausome Things”. We get enough of hearing about the bad things about autism; let’s hear about the good things! For my contribution, see the list below…. (Note: I’m taking a few of them from my contributions to the #AutismUpside campaign.)
And now, as we approach the end of April 2013, we’ve got Week 4 of the Autism Women’s Network April Autism Upsides campaign. And we’ve got the Autism Positivity 2013 Flash Blog coming up as well, which the contents of this campaign can help with! So, enjoy the last two days of April (May will be a new Storify) with the Autism Upsides campaign!
Hey, everyone! This is just a short post to remind people that Autism Positivity Day 2013 is coming up on Tuesday (April 30)! The theme this year is “ausome” things about ASD – the flash blog is trying to come up with at least a thousand of them. As the intro post says, we all know a lot of the bad, unpleasant or difficult things that accompany autism; we live with them every day. But there are good things too! So let’s get those lists started!
And to prompt you, feel free to read the Autism Upside Storifies of the past few weeks (each word is a link to the different storify posts)! (Now including Week 4!) We’ve got you started, let’s keep up the good work!
And… onto Week #3 of the #AutismUpside campaign on Twitter! We’ve got more coming in, so pop in and take a look!
My Mom is still working on making connections with Eastern Health, trying to get services for me so that I can live independently. I’m working (somewhat – I seriously need help with motivation, depression has me in its grasp) on getting Income Support and Employment Insurance. I’ve filled out the forms and stuff, now it’s mostly waiting.
But for Mom… she keeps running into the same old problem. “If she has an IQ of higher than 70, we can’t help her.”
The Autism Upsides campaign on Twitter has been going wonderfully, to the extent that the storify I set up last week has become extremely long. There have been so many tweets coming in; definitely something for all of us to be proud of. In order to ensure that people who have already read most of it don’t have to go through clicking “Read More” a ridiculous number of times, I’ve decided to split the Storify of the Autism Upsides campaign up into weeks, rather than just have one for the entire month.
So, here is Week 2 (Monday April 15th to Sunday April 24th, 2013) of the Autism Women’s Network #autismupside campaign on Twitter.
Okay, Musing of an Aspie‘s “Take a Test Tuesday” has now changed over to “Take a Survey Tuesday”, at least for a month. I highly recommend them; the questions are asked by ASDers for other ASDers. The first one, now up, is about relationships – friendships, family, romantic.
So, what are you doing still over here? Pop over to her post and either fill out the survey on Survey Monkey, or answer in the comments!
Today is the flash blog day for Autistic People Are, a follow-up to last week’s Autistic People Should flash blog. I’m not going to write a terribly long post today, because what I have to say is fairly short.
Autistic people are fellow human beings.
Yes, “fellow human beings” is emphasized. Because that’s how we should be treated.
Please, think about that before you start trolling or hating.
[Edit: Mar. 03/13] Check out Unstrange Mind’s post about Autistic People Are; it gives details about what these two flash blogs are all about, and what’s been done so far. [/End Edit]
So, here it is, the post where I talk about how I felt concerning my Aspie diagnosis.
Official diagnosis? Relief.
Now, at least some of this was because, well, I’d actually sought that diagnosis. I’d made a point of going to the people who helped a friend of mine get his diagnosis, looking for one. It gave me the ability to access information and resources (including the Disability Tax Credit and the Registered Disability Savings Plan: Gov’t of Canada initiatives to help Canadians with disabilities that result in “severe and prolonged impairment of physical or mental functions” – which, quite frankly, ASD does).
Unfortunately, I’m still looking for some of those necessary supports….
Warning: Very long post!
Once again, I seem to be writing something other than I meant to because of a response I started writing to one of The Third Glance‘s posts. This one is on my own ASD behaviours as a child and teen – what I know of them, at least. I have vague memories of my childhood, somewhat better ones of my adolescence, but most of what I remember is generic things that repeated, and specific events that stood out in my memory for some reason or another (some good, some bad). I may easily miss some – I’m still learning what is “normal” for ASD and what might have been something else, but these are the ones that my mother and I remember (or I experienced). Not in any particular order, except that of how they occurred to me while writing.
(Before I get into the details of the post, if you haven’t read it already – or if you read it before Jan. 09/13 – I would greatly appreciate you reading all the way through my First Post. Then feel free to come back. Thank you.)
Originally, this post was going to be about my diagnosis, and how it felt to finally have that official medical validation that said, “Yes, I have Asperger’s. Yes, I am on the autistic spectrum.”
But then I read The Third Glance’s article about how she survived jury duty, and in my response, I found myself explaining about why I wouldn’t make a good candidate for jury duty. I don’t have as much trouble processing audial/verbal input as she does, though I know I’d end up exhausted at the end of each day. No, my reason was both much more and much less complex, in some ways.
I can’t make decisions.
Pretty big post for my second one, but some of the other posts I’ve been reading have prompted me to put this on my own blog. Most of this post is actually written in response to two other posts, in Flappiness’s blog: Silencing Ourselves: A Plea for Civility in the ASD Community; and Civility is Simple, not Simplistic: A Response. Check them out; they have some really good points.
So, without further ado:
Just because people disagree with what you think is no reason to throw civility out the door. And yes, when you’re civil, it’s a lot more likely that people will listen to you, and at least consider your point. If you call people names, etc., they’ll feel hurt, and they’ll ignore you and whatever you’re trying to say. Which can be quite damaging when you’ve got a good and / or important point to make.
But there’s another element to that in the ASD community.
Okay, this is my first post on this blog, although I’ve been using LiveJournal for a while now. But rather than the general stuff and fiction of my LJ blog (now at tag’s Haven), this is going to concentrate on my life; the difficulties and achievements I have in this life.
I was inspired by two blogs on WordPress to get this done, and a third confirmed that I was doing the right thing. Flappiness and The Third Glance were the ones that inspired me, and Aspects of Aspergers essentially told me I was doing the right thing, just by reading through their blogs.
So, a bit about me.
Currently I work as an intern with the Independent Living Resource Centre, which is a cross-disability organization that aims to help people with disabilities live fulfilling, independent lives.
Independent Living is as follows:
Independent Living is about having choices, making decisions, taking risks, and taking responsibility. Independent Living is about having control over one’s own life.
“Independent Living is not measured by the quality of tasks we can perform without support, but by the quality of life we can have with support.”
–from the ILRC Website
The other things you need to know about me is that I write SF and Fantasy, both fanfiction and original, and I hope to get published sometime within the next ten years at most; and that I love cats, especially the one who happens to be my avatar, Imber.
[edit Jan. 08/13]
Before you finish reading this post, I’d like to make a note about my life, and I want everyone who reads this blog to take it seriously, please. My parents made some mistakes with me as I was growing up. But every parent does that. And mine didn’t have the advantage that many parents have today of knowing that I was autistic (let’s not get into issues of denial and problems accessing services, okay?). I had an advanced vocabulary from the time I could talk, which was at an about average time, and never showed any indications of problems before I entered kindergarten. Back then, that was too late to be considered an ASD. They didn’t even find and acknowledge Hans Asperger’s papers on AS until three years before I graduated high school, and it wasn’t an official diagnosis until the year I graduated. So my parents did the best they could with what info they had. And they went to bat for me with school officials, which wasn’t easy. And now I’m living with them, while we’re all trying to deal with the fact that I have definite, measurable issues with independent living, as proved by the 9 years I spent on my own, and I haven’t been able to get an OT – see my next post, coming soon – and the local Autism Society is being no help at all.
So. My parents are in a very frustrating situation, and are still doing the very best they can to help me. If I make any comments about things that they’ve done, or not done, throughout my life… it is not their fault. They didn’t have the resources we have today, nor did they have the resources we are developing here and now, on my blog and others, with adult autistics being able to tell people what it was like for them growing up. Please take that into consideration before you make any comments on my parents’ behaviour that might be mentioned in here.
Thanks for reading. See you all later!