There have been a lot of discussions around my blog “circle” about Kelli and Issy, and what violence from autistics actually means, and what are some ways to deal with it (both from the autistic and the parent point-of-view). In fact, as I believe I mentioned in yesterday’s post, there are some specific posts on other blogs about the subject I want to recommend. I also want to talk about my own experience (minor) with violence in myself, as requested by Ariane in her post in Emma’s Hope Book on Tuesday (see below, it’s one of the ones I’m recommending you read).
It’s currently in the mid- to high-twenties (Celsius; mid-seventies to mid-eighties Fahrenheit) here in St. John’s, and I’m… miserable. Thoroughly enervated (which does not mean what it appears to in Harry Potter; it actually means drained of energy), and occasionally sick from the heat. I’m just lucky that my bedroom and “study” are down in the “sub”-basement of the house. (Well, not just lucky; my parents are well aware of the problems that I have with heat, so it was deliberately arranged this way.) But because Mom has trouble tolerating air-conditioning, there’s none in the house. Twenty minutes or so ago, Dad informed us that the kitchen was currently 4°C hotter than it was outside.
The problem? I’m allergic to heat, and I seem to also have problems with thermoregulation, which taking the Effexor last fall made worse.
[Note: This post and the next one (#SensoryIssues: Interoception & Psychosomatism) are linked in theme, so they will be posted closely together. Same day, at least.]
I don’t complain a lot about pain.
I’m sure some people (*cough* my family *cough*) will disagree, but… I don’t. Not when compared to what I actually feel, at least. I tend to feel a fair bit more pain than I talk about to people, partly because I don’t know how to say things, and partly because… well, see my hypochondria posts (links are below) for the details on how I feel about that.
Oh, if I have a nasty headache, or bad cramps, or I get a sensory “spike” (like when cutlery clashes together, or a child squeals in excitement, etc.)… then I complain. Or at least mention it.
Sometimes very obviously (aka covering my ears with my hands, holding my stomach), because I’m never sure how to convey the information and words don’t seem to be enough. I’m not always listened to (especially by my siblings; my parents are a lot more understanding, particularly lately, as we learn new stuff about the sensory sensitivities of autistics), so broad, sometimes exaggerated gestures have become my main effort to get across to people that I’m hurting. (Of course, this then results in people – *cough* my brother *cough* – telling me that there’s no need to do that, it’s not like it’s an issue. [Said after I covered my ears to try to deal with my niece’s excited squealing. I wasn’t trying to make her feel bad or anything; I just could not tolerate the pitch of her voice, and no one was listening to my requests to please be a bit quieter. </rant over>])
“Let there be light!” (Or, in literal translation, the order, “Make light!”)
So, yes, this post is about sensory stuff. Specifically, visual sensory stuff, and living with people who aren’t as sensitive to light as I am.
Everyone needs light. We’re a diurnal species, meaning that we’re active in the daylight. There are very good reasons for that, involving the anatomical makeup of our eyes – namely, we (as a species) aren’t very good at seeing in the dark, and vision is our species’ primary sense.
More than that, we need a certain amount of sunlight to stay healthy. It helps our bodies produce Vitamin D, which helps with the absorption of calcium, and assists in preventing depression (or helping to mitigate it), to name just two benefits of sunlight.
Warning: Partial venting post ahead.
Well, it’s happened again. This time with my right eye, and there’s no pain in the optic nerve, but around the eye is… ow. So Not Fun.
At least with no pain in the optic nerve (which was the worst of the pain with the left eye), I can still function. Not as well as I’d like, but that happens whenever I have a headache, so….
So, I had my monthly visit to my psychologist today, and we were talking about some of the posts I’ve made since my last visit (Feb. 15), including the hypochondria one. What she said was that she thinks it’s not hypochondria – which she considers to be a serious ailment where, to quote her, “you have a tic in your eye and think you’re going blind, or you have a pain in the back of your head and think you have a brain tumour” – but a hyper-awareness of physical sensations. She says that a number of the people on the spectrum that she’s dealt with (not all, but definitely most) have that hyper-awareness.
So, another “Let’s Talk About” post. This one, because I know that some people don’t respond well to massage therapy, for a variety of reasons (some other autistics are touch-sensitive, my mother bruises easily when it comes to deep massage, etc.). Also, please note that I am talking about massage therapy done by a registered massage therapist, not simply massage applied by a masseur / masseuse. Registered massage therapists (RMT) are trained in physiology and are required to adhere to certain standards to maintain their status as “registered”.
Massage therapy is the assessment and treatment of the soft tissues of the body. Therapeutic massage is used to prevent dysfunction, to relieve pain, to restore or augment function and to promote health.
Massage therapy encompasses a wide range of different techniques which can affect the circulatory, musculoskeletal, nervous, and respiratory systems, and which form the basis of massage therapy treatment. Hydrotherapy, stretching and strengthening exercises, instruction in proper breathing, and assessment and correction of posture are also tools that massage therapists regularly employ in their treatment protocols.
–Newfoundland and Labrador Massage Therapists’ Association (http://www.nlmta.com/aboutmt.asp)
So, mentioned in the last post that I was going to the doctor this morning. I had an appointment to talk to her about my cholesterol (for which I had a blood test last week, finally), and I also wanted her to act as my referrer to Avalon Employment Inc., which helps people with developmental and intellectual disabilities find and handle work. (And considering some of my work requirements, I could use the help!) Not to mention, I also wanted to talk to her about what happened Wednesday and yesterday.
Please note that if you’re triggered by medical issues, you may not want to read the following. Read on
No, this is not about revenge. This is about eyes, and sensitivity to light, and headaches.
I’ve spent the last two days curled up in bed, eyes closed, trying to avoid every hint of light I could – which, really, means sleeping most of the time. Even now, I’m wearing sunglasses in my room which just has a desk lamp on, in order to try to avoid the stabbing pain behind my left eye, which I’ve been experiencing since sometime between going to sleep Tuesday night and waking up Wednesday morning. Continue reading