Tag Archives: issues

#SensoryIssues: Heat & Thermoregulation

It’s currently in the mid- to high-twenties (Celsius; mid-seventies to mid-eighties Fahrenheit) here in St. John’s, and I’m… miserable. Thoroughly enervated (which does not mean what it appears to in Harry Potter; it actually means drained of energy), and occasionally sick from the heat. I’m just lucky that my bedroom and “study” are down in the “sub”-basement of the house. (Well, not just lucky; my parents are well aware of the problems that I have with heat, so it was deliberately arranged this way.) But because Mom has trouble tolerating air-conditioning, there’s none in the house. Twenty minutes or so ago, Dad informed us that the kitchen was currently 4°C hotter than it was outside.

The problem? I’m allergic to heat, and I seem to also have problems with thermoregulation, which taking the Effexor last fall made worse.

Read on for details re how heat affects me

#SensoryIssues: Pain

[Note: This post and the next one (#SensoryIssues: Interoception & Psychosomatism) are linked in theme, so they will be posted closely together.  Same day, at least.]

I don’t complain a lot about pain.

I’m sure some people (*cough* my family *cough*) will disagree, but… I don’t. Not when compared to what I actually feel, at least. I tend to feel a fair bit more pain than I talk about to people, partly because I don’t know how to say things, and partly because… well, see my hypochondria posts (links are below) for the details on how I feel about that.

Oh, if I have a nasty headache, or bad cramps, or I get a sensory “spike” (like when cutlery clashes together, or a child squeals in excitement, etc.)… then I complain. Or at least mention it.

Sometimes very obviously (aka covering my ears with my hands, holding my stomach), because I’m never sure how to convey the information and words don’t seem to be enough. I’m not always listened to (especially by my siblings; my parents are a lot more understanding, particularly lately, as we learn new stuff about the sensory sensitivities of autistics), so broad, sometimes exaggerated gestures have become my main effort to get across to people that I’m hurting. (Of course, this then results in people – *cough* my brother *cough* – telling me that there’s no need to do that, it’s not like it’s an issue. [Said after I covered my ears to try to deal with my niece’s excited squealing. I wasn’t trying to make her feel bad or anything; I just could not tolerate the pitch of her voice, and no one was listening to my requests to please be a bit quieter. </rant over>])

Continue on to read more re Pain Issues

Fiat Lux!

“Let there be light!” (Or, in literal translation, the order, “Make light!”)

So, yes, this post is about sensory stuff. Specifically, visual sensory stuff, and living with people who aren’t as sensitive to light as I am.

Everyone needs light. We’re a diurnal species, meaning that we’re active in the daylight. There are very good reasons for that, involving the anatomical makeup of our eyes – namely, we (as a species) aren’t very good at seeing in the dark, and vision is our species’ primary sense.

More than that, we need a certain amount of sunlight to stay healthy. It helps our bodies produce Vitamin D, which helps with the absorption of calcium, and assists in preventing depression (or helping to mitigate it), to name just two benefits of sunlight.

Continue on for the sensory stuff….

Services = IQ ≤ 70

*sighs*

My Mom is still working on making connections with Eastern Health, trying to get services for me so that I can live independently. I’m working (somewhat – I seriously need help with motivation, depression has me in its grasp) on getting Income Support and Employment Insurance. I’ve filled out the forms and stuff, now it’s mostly waiting.

But for Mom… she keeps running into the same old problem. “If she has an IQ of higher than 70, we can’t help her.”

Click for further venting and expressions of dissatisfaction

Recommendation: Musing’s Survey #1

Okay, Musing of an Aspie‘s “Take a Test Tuesday” has now changed over to “Take a Survey Tuesday”, at least for a month. I highly recommend them; the questions are asked by ASDers for other ASDers. The first one, now up, is about relationships – friendships, family, romantic.

So, what are you doing still over here? Pop over to her post and either fill out the survey on Survey Monkey, or answer in the comments!

😉 tagAught

No: Guilty Feelings

A few weeks ago, Musings of an Aspie wrote a post about her “No” reflex, and how she needed to work on pushing her boundaries. A lot of us need to work on that, to avoid turning into recluses (or at least, that’s the worry my mother has constantly had for me, which may also be linked to my depression).

However, there is another side to things, and I had a dream last night which reminded me of it: Working on recognizing when we need to say “No”. Continue reading

Hyper-Tense? Medical Stuff

So, mentioned in the last post that I was going to the doctor this morning. I had an appointment to talk to her about my cholesterol (for which I had a blood test last week, finally), and I also wanted her to act as my referrer to Avalon Employment Inc., which helps people with developmental and intellectual disabilities find and handle work. (And considering some of my work requirements, I could use the help!) Not to mention, I also wanted to talk to her about what happened Wednesday and yesterday.

Please note that if you’re triggered by medical issues, you may not want to read the following. Read on

An Eye for An Eye

No, this is not about revenge. This is about eyes, and sensitivity to light, and headaches.

I’ve spent the last two days curled up in bed, eyes closed, trying to avoid every hint of light I could – which, really, means sleeping most of the time. Even now, I’m wearing sunglasses in my room which just has a desk lamp on, in order to try to avoid the stabbing pain behind my left eye, which I’ve been experiencing since sometime between going to sleep Tuesday night and waking up Wednesday morning. Continue reading

Fatigue

So, the post today is to talk about fatigue, which is kind of appropriate considering that I’ve been drowsing / sleeping all afternoon. *sighs*

I say “fatigue” instead of “tiredness” to distinguish between the two sorts. My dictionary on the computer has a section called The Right Word under some words, and here’s what it says about the various different terms used to indicated tiredness:

THE RIGHT WORD
Tired is what you are after you’ve cleaned the house, spent two hours reading a dull report, or trained for a marathon; it means that your strength and energy are diminished, without giving any indication of degree.
Weary, on the other hand, is how you feel after you’ve had to interrupt your dinner five or six times to answer the phone. It implies not only a depletion of energy but also the vexation that accompanies having to put up with something that is, or has become, disagreeable.
Exhausted means that you are totally drained of strength and energy, a condition that may even be irreversible (: exhausted by battling a terminal disease).
Fatigued is a more precise word than either tired or weary; it implies a loss of energy through strain, illness, or overwork to the point where rest or sleep is essential (: fatigued after working a 24-hour shift).
Tuckered is an informal word that comes close in meaning to fatigued or exhausted, but often carries the suggestion of loss of breath (: tuckered out after running up six flights of stairs).

I definitely mean “fatigued”, though not in the exact sense used in the definition above. I mean fatigued as in a long-term condition (that isn’t “exhaustion” as per the definition above).

Go on, more to read….

Hypochondria: Medical Students Syndrome?

I had to go to the grocery store today, to pick up some things for dinner tonight along with my meds. By the time I got back home, I was shaking and in sensory overload. I spent about an hour curled up in my dark room, part of that sleeping, and when I got up, I felt better.

Talking to Mom later, while dinner was cooking, she mentioned what I have since found out is referred to as “medical students syndrome” – a problem encountered by medical students when they are studying certain diseases, they start to associate any problems they might have with that disease, and worry that they have it – because I didn’t used to have this extent of problems going to the grocery store. (Note that it doesn’t affect just medical students, but they’re the most-affected group.) It’s apparently a type of hypochondria. My father is also worried about me demonstrating this. (Quite honestly, I’m sick and tired of being accused of that. As a child, I had psychosomatic complaints, not hypochondria.) I think I need to write this out, and I’d like other opinions.

(Okay, experiencing crying jag here – a red flag, as my previous psychologist put it, that we’ve walked into a sensitive issue. Which being thought a hypochondriac is.)

The thing is, it could also be what I wrote about in my Coping Mechanisms post. It could be a lowered sensory threshold, whether because of the stress of the last several months, or some lingering issue caused by my incompatibility with Effexor. Or it could be that I am becoming more sensitive as I age.

Continue reading