And now, as we approach the end of April 2013, we’ve got Week 4 of the Autism Women’s Network April Autism Upsides campaign. And we’ve got the Autism Positivity 2013 Flash Blog coming up as well, which the contents of this campaign can help with! So, enjoy the last two days of April (May will be a new Storify) with the Autism Upsides campaign!
Hey, everyone! This is just a short post to remind people that Autism Positivity Day 2013 is coming up on Tuesday (April 30)! The theme this year is “ausome” things about ASD – the flash blog is trying to come up with at least a thousand of them. As the intro post says, we all know a lot of the bad, unpleasant or difficult things that accompany autism; we live with them every day. But there are good things too! So let’s get those lists started!
And to prompt you, feel free to read the Autism Upside Storifies of the past few weeks (each word is a link to the different storify posts)! (Now including Week 4!) We’ve got you started, let’s keep up the good work!
And… onto Week #3 of the #AutismUpside campaign on Twitter! We’ve got more coming in, so pop in and take a look!
My Mom is still working on making connections with Eastern Health, trying to get services for me so that I can live independently. I’m working (somewhat – I seriously need help with motivation, depression has me in its grasp) on getting Income Support and Employment Insurance. I’ve filled out the forms and stuff, now it’s mostly waiting.
But for Mom… she keeps running into the same old problem. “If she has an IQ of higher than 70, we can’t help her.”
The Autism Upsides campaign on Twitter has been going wonderfully, to the extent that the storify I set up last week has become extremely long. There have been so many tweets coming in; definitely something for all of us to be proud of. In order to ensure that people who have already read most of it don’t have to go through clicking “Read More” a ridiculous number of times, I’ve decided to split the Storify of the Autism Upsides campaign up into weeks, rather than just have one for the entire month.
So, here is Week 2 (Monday April 15th to Sunday April 24th, 2013) of the Autism Women’s Network #autismupside campaign on Twitter.
Okay, didn’t expect to be doing a post on this, but it turns out that one of the main characters in my Camp NaNoWriMo novel (It Came From the Library, in case anyone forgot ;)) is autistic. In some ways, she’s a combo of one of my best friends and myself.
(In other ways not, but she’s sort of a homage to my best friend. Shh! Don’t tell her! *pauses* Whoops, she reads this. Oh well, she deserves it. She’s been my friend through thick and thin for over 10 years now, and the support she’s provided me has been truly invaluable. Even if we’ve never met in person, she deserves the appellation of “best friend”.)
The thing is, I want the character to be partially non-verbal. When she gets stressed, she can lose her words. But I don’t have this issue (not unless I’m so seriously stressed that I’m on the edge of a meltdown and about to go over, or I’m being forced to make a decision), so I don’t have as much information about it as I’d like. I have read a number of blog entries that mention it (Ballastexistenz, for one, and Unstrange Mind’s, to provide two examples of bloggers who have brought it up), but I’d like more info, if anyone’s willing to provide it. (Note: This is not a demand. I’m just hoping that some of you who have non-verbal periods would be willing to share info and thoughts with me. Questions are below, as well as details about the character.)
The Autism Women’s Network is running a Twitter campaign for the month of April focusing on the upsides of autism. Because I think this is important, I’ve created a Storify of it, and am embedding it in this post. I will be updating it throughout the month, so pop by to check it out later on as well! And if you’re on twitter, please think about adding your own Autism Upsides to the campaign using the hashtag #autismupside.
Another flash blog. This one prompted by the Autism Speaks video “I Want to Say”, which was supposed to be about autistics using AAC… but no communications from autistics were actually shown. Which renders the supposed purpose of the video useless. Read more about it here, at the flash blog.
I’m verbal. I don’t need AAC to communicate. But I am by far more comfortable communicating in email and text and via the computer than I am face-to-face (or, gods forfend, on the phone). I am autistic.
I want to say: Autism Speaks, I don’t like you. Things like that video are fear-mongering and hate-promoting. Things like that video portray us as less than human. We are not.
Okay, Musing of an Aspie‘s “Take a Test Tuesday” has now changed over to “Take a Survey Tuesday”, at least for a month. I highly recommend them; the questions are asked by ASDers for other ASDers. The first one, now up, is about relationships – friendships, family, romantic.
So, what are you doing still over here? Pop over to her post and either fill out the survey on Survey Monkey, or answer in the comments!
So, I had my monthly visit to my psychologist today, and we were talking about some of the posts I’ve made since my last visit (Feb. 15), including the hypochondria one. What she said was that she thinks it’s not hypochondria – which she considers to be a serious ailment where, to quote her, “you have a tic in your eye and think you’re going blind, or you have a pain in the back of your head and think you have a brain tumour” – but a hyper-awareness of physical sensations. She says that a number of the people on the spectrum that she’s dealt with (not all, but definitely most) have that hyper-awareness.
Today is the flash blog day for Autistic People Are, a follow-up to last week’s Autistic People Should flash blog. I’m not going to write a terribly long post today, because what I have to say is fairly short.
Autistic people are fellow human beings.
Yes, “fellow human beings” is emphasized. Because that’s how we should be treated.
Please, think about that before you start trolling or hating.
[Edit: Mar. 03/13] Check out Unstrange Mind’s post about Autistic People Are; it gives details about what these two flash blogs are all about, and what’s been done so far. [/End Edit]
Today is the “Autistic People Should” flash blog day. It’s being done because when you type “autistic people should” into autocomplete search engines, you get some pretty disgusting top searches (for details, check out the Autistic People Should blog, and some of the posts there – I’m not going to honor that search by typing any of those terms into this post). (Warning: Can be triggering.)
I had a hard time coming up with answers to that question. (Speaking of questions, I highly recommend reading Musings of an Aspie’s post on Autistic People Should in particular – it has some excellent details and suggestions.)
But I was thinking about it this morning, and I found myself coming up with some interesting (and hopefully much better) ways to complete that sentence.
Autistic people should be able to be themselves.
Autistic people should not have to be ashamed of / angry about / embarrassed about / humiliated by who they are.
Autistic people should not have to conform to the social mores of allistic / neurotypical society. (Please note that I’m not saying anything here about the “moral” mores. What I mean is that we should not be expected to want to go out a lot, make lots of friends, enjoy loud and bright places, etc. We should still be held to the standards of not hurting people and the like. We are perfectly capable of that.)
Autistic people should be able to live in the way that they prefer. (Independent, independent with support, etc.)
Autistic people should be accepted / respected for who and what they are.
Autistic people should not be looked down upon as “defective” or “damaged”.
Autistic people should be listened to about who they are and what they want.
In other words: Autistic people should be treated like human beings, because that is what they are.
[Edit: Feb. 23/13 @20:40] Unstrange Mind has also done an Autistic People Should post focused on the fact that we are all human beings.