Monthly Archives: June 2014
Okay, the post I’m recommending is not actually called “Interrupting and Correcting”; it’s a series of 3 posts about the AS (read that as Asperger’s Syndrome or Autism Spectrum) need to be Right. But… reading through it? My first thought was, Mom, this is why I have such a hard time controlling my urge to step in with a correction when I know you’ve made a mistake.
Because as my mother would (correctly) tell you – that’s a major problem I still have. I can get by in social situations, for the most part. I learned early on that politeness and “shyness” are a good combo – and I do seem to give off the general vibe of “asexual” when meeting new people. (Or, at least, if people do flirt with me, I don’t notice, and don’t respond – I tend to draw in on myself when meeting new people as well….) But say something that I know is incorrect… and I have to almost bite down on my tongue (literally) to keep myself from making a correction. And still, about half the time, I don’t manage to stop it.
Now, I didn’t get the same type of bullying that the author of this post got – I was more inclined to be bullied because I was smart, and because I was a very tall, clumsy girl, in elementary school, and in high school, I was with people as smart as I was, so there wasn’t that kind of “that person has the answers” dynamic going on. But… being smart got me the respect of the teachers. And therefore their approval. And that mattered, because one thing I was shown in elementary school is that there are good adults out there who will do their best to protect you from bullies. And adults are more likely to believe you when you don’t feel well or can’t do something if they respect you. (Not always, but enough so that my analytical side could come to that conclusion.)
So, from Snakedancing’s blog, I give you:
- #Aspergers & Interaction: Being Right Pt. 1
- #Aspergers & Interaction: Being Right Pt. 2
- #Aspergers & Interaction: Being Right Pt. 3
Please note that the topic above is really the main topic of only the first post. The other two go into strategies to help deal with the need to be right.
(P.S. My planned post following up on Modes of Thought will be out – either tomorrow or later today, depending on whether you subscribe to the “day changes over at midnight” theory or the “day changes over after you fall asleep” theory. If the latter, it will be out tomorrow – this is what I say; if the former, it will be out later today – which is what the website says.)
This is very much an aside, not a standard post, but I think it needs to be said.
Sunday, I posted a recommendation link post to Nick Walker’s “What is Autism?” I then proceeded to go and read his entire blog (called Neurocosmopolitanism). There aren’t very many posts there at the moment (from what I can see, he’s quite the busy man – and there is a new one up today), but the ones that are, are well thought-out, and thought-provoking.
One of those posts – the second one – has a very long title: Throw Away the Master’s Tools: Liberating Ourselves from the Pathology Paradigm. I’m not going to go into loads of details here – that will be reserved for the recommendations post I intend to put up sometime this week – but there is something important that I want to say straight out.
This post – with its description of the pathology paradigm, how it damages us and impoverishes society (not necessarily mentioned, but I’m a firm believer in the “Patchwork Quilt” society, rather than the “Melting Pot”), and its suggestions for how to build a neurodiversity paradigm (that is not solely about autism, but other “conditions” involving differences in neurological wiring) really made me think. And one of the things that most made me think was about language use, and how it affects our views of ourselves. In particular, the term “Autism Spectrum Disorder”.
Nothing wrong with the term “Autism Spectrum”. That’s a very good term. It’s the “Disorder” component that Mr. Walker takes issue with, and argues against very well indeed. He points out that using the term “Disorder” makes it appear that there is something “wrong” with us – which is exactly the sort of thinking that autistic advocates are trying to fight. That the neurodiversity community is trying to fight.
So. I have gone through my links list, and changed each description/category of “ASD” to “Autistic”. I have not yet decided whether I will do this to my posts or not – I suspect not, simply because they provide a record of how I thought at the time. But the change has to start somewhere, and who better for it to start with than ourselves and our allies?
[Added Note: I have also changed the title of my post category and tag of “ASD” to “Autism Spectrum”.]
Most of you reading this blog probably know Ariane and her daughter Emma, if only in reference to their blog, Emma’s Hope Book. (If you don’t, click on the link. Really. Ariane is a great resource for parents who are having difficulties dealing with their autistic children, and is a great proponent of presuming competence because of her own experiences.) Recently (as in the last half year, maybe somewhat more), Emma’s been contributing directly to the posts on the blog. One of the most recent posts was about the body-mind disconnect that Emma experiences; her brain knows what she wants to communicate or do, and her mouth (and/or body) will do something completely different.
MedicAlert® Canada (officially “MedicAlert® Foundation Canada“) includes “Autism Spectrum Disorder” (as well as “Autism”, “High-Functioning Autism”, and “Kanner’s Autism”) in the list of conditions that they can include on one’s record. I just joined yesterday, because my mother has been worried that if I ever end up in an accident, or some other situation where I could panic and lose my speech, or end up unconscious, emergency responders might not realize that I’m autistic, and that could be part of the problem. (There’s also the concern about cops, and if I ever get taken in for some reason or another – there have been incidents in Newfoundland with the cops misunderstanding autistic behaviours as drunk or drugged….)
Most people (in Canada and the US, at least!), I know, have at least heard of MedicAlert, and know the symbol and what it means (aka that the person wearing it has certain conditions, and to know what they are, flip the ID symbol). But I’m not sure that people necessarily understand the details of how it works.