There’s a series on Twitter about how (we) autistics feel negative emotions right now, prompted by one of Neurodivergent Rebel’s Twitter #AskingAutistics polls. (Which I highly recommend, by the way.) And since there are things going on in my life right now that make this a fairly relevant topic for me, I decided to write a post on it. Or more specifically, write a current post on grief. I’ll probably write about others later, but this is the one relevant right now.
I’ve mentioned alexithymia – the inability to recognize/categorize one’s own emotions, and sometimes to have physical reactions to emotions instead of “feeling” them – before, both when speaking of imagination, and about psychosomatic issues. And there’s also the issue that autistics tend to emote in ways that are not recognized/understood by the neurotypical audience. All of this means that quite often, the neurotypical audience has no idea what we feel, or how deeply/intensely.
One thing I do know about grief, from previous experience, is that I process it very differently from most of my family. (I’m not sure about my dad – we haven’t really discussed that.) Of course, no one processes emotions in exactly identical fashion, whether from the neurotypical or the neurodiverse population… but my way is rather different from most others that I’ve heard of.
So, at Social Club (at the Autism Society for NL; it’s basically a small group getting together for social activities – playing games, doing art, etc.) this past weekend, we had a new person there. And that person mentioned that xe was obsessed with one particular topic (I can no longer remember what it was, that wasn’t the important thing), “like with OCD” (obsessive-compulsive disorder).
On my post about Hyper-Focus vs. Lack of Focus, Unstrange Mind called me on using the term “special interest” for interests that we have and like to focus on – a term that I used to replace the term “obsession”, which tends to carry a negative connotation. She suggested using the term “passion”, which I thought was a very good idea, and have since cleaned up my vocabulary that way. 🙂
Anyway, getting back to the topic of the post, I was rather disturbed by the way that person was using the term “obsession” to define a particular area of interest, because at one point, my mother suggested I might be OCD, and I asked my psychologist about the matter. And what he said was something of an eye-opener.
So, I was taking a look at my stats (yay, people are interested in my analysis of the problems with the SD article!), and I noticed a referring link from www.lunalindsey.com. I went, okay, I haven’t seen this before… so I clicked on the link.
The post is titled: Splines Theory: A Spoons Metaphor for Autism. In it, Ms. Lindsey looks at the spoons metaphor for dealing with energy resources with invisible disabilities, and some issues she has with it, and provides a new metaphor for exploring what’s going on that causes us to have energy drains and difficulty changing routines and such. (And a commenter adds another metaphor, for those who aren’t a comfortable with computer-oriented ones.)
It’s a rather interesting look at things, and resonates with me. Quite a bit. It makes sense – even more sense than the spoons metaphor (which is incorporated into the Splines Theory as a whole). I like it.
Update Jun. 15/17: Updated all links to Unstrange Mind’s new website.
And we’re back again with Unstrange Mind, who is doing all of us the favour of going through the DSM-5 Autism Spectrum Disorder diagnostic criteria, and analysing it in terms of what it means both for those who are already diagnosed (even though we’re grandfathered in), and those who will be looking for a diagnosis. (Note: Frankly, based on her analysis and just what the criteria says, I fit even better in the ASD diagnosis than I did in Asperger’s! I may have said that before, but it bears repeating.)
Her analysis is not yet finished, but (as mentioned in the top note), I will continue to update as it progresses. However, I thought it was important enough that I want to start getting it out now.
Autism and the DSM-5: Diagnostic Criteria (Section E and Severity Levels): Section E looks at other possibilities for the symptoms; severity levels are ways to measure the current severity of the symptoms in sections A & B (and they are to be measured separately, and are listed as fluid, potentially changing back and forth over time). Severity levels replace the “high functioning” and “low functioning” labels, which I suspect pleases a lot of my fellow autistics. It certainly pleases U.M. She has also posted the contents of “Table 2”, which lists the criteria for the severity levels.
DSM-5 and Autism: Development and Course (Part 2): The second paragraph in the commentary section, this one concentrates on “regression” – which isn’t necessarily the preferred term, but is the one used by the DSM. U.M. illustrates this issue with some personal examples.
DSM-5 and Autism: Development and Course (Part 4): The fourth paragraph continues the early signs of autism, referencing deafness and the fact that allistic children show some of the same repetitive and restrictive behaviours as are typical of autism, but not to quite the same extent (“[t]he clinical distinction is based on the type, frequency, and intensity of the behavior”).
More to follow as they are posted. This is a highly recommended set of posts, and I encourage everyone who has any interest in ASD and what the criteria is to read them.
Okay. First of all, this was not originally the next post I was going to write. I have an unfinished post about driving as stimming (which I’ve been meaning to finish and post for about three to four months now – mea culpa), and there are some other issues that I want to explore as well. But I went out for coffee with my local friend tonight, and we got to talking about some of the things we experience. One of them was the element of focus, and it ended up being (pun not intended) the focus of our conversation. And I thought it might be interesting to open up the dialogue to others as well.
I have two different “focus” modes: What I call hyper-focus, or concentrating so hard on one thing that everything else (including calls to come and eat dinner) gets blocked out; and lack of focus, where I’m lost and can’t decide what needs doing or what has priority. And a lot of things I’ve read about other autistics say the same thing. Especially if it involves one of our special interests (definitely hyper-focus), or if it’s something we’re not at all interested in (lack of focus).
The lack of focus element definitely seems to be linked to problems with executive function, and it’s quite possible that the hyper-focus is as well.
Today is Autism Positivity Day 2013, and the theme for this year is “1,000 Ausome Things”. We get enough of hearing about the bad things about autism; let’s hear about the good things! For my contribution, see the list below…. (Note: I’m taking a few of them from my contributions to the #AutismUpside campaign.)
This is just a short note to let people who are interested in me as a person and as a writer know that my Other Blog, which used to be on LiveJournal, has now moved to my own WordPress site at: tag0.t1goold.net. Feel free to pop by for a visit!
The Autism Upsides campaign on Twitter has been going wonderfully, to the extent that the storify I set up last week has become extremely long. There have been so many tweets coming in; definitely something for all of us to be proud of. In order to ensure that people who have already read most of it don’t have to go through clicking “Read More” a ridiculous number of times, I’ve decided to split the Storify of the Autism Upsides campaign up into weeks, rather than just have one for the entire month.
So, here is Week 2 (Monday April 15th to Sunday April 24th, 2013) of the Autism Women’s Network #autismupside campaign on Twitter.
Okay, didn’t expect to be doing a post on this, but it turns out that one of the main characters in my Camp NaNoWriMo novel (It Came From the Library, in case anyone forgot ;)) is autistic. In some ways, she’s a combo of one of my best friends and myself.
(In other ways not, but she’s sort of a homage to my best friend. Shh! Don’t tell her! *pauses* Whoops, she reads this. Oh well, she deserves it. She’s been my friend through thick and thin for over 10 years now, and the support she’s provided me has been truly invaluable. Even if we’ve never met in person, she deserves the appellation of “best friend”.)
The thing is, I want the character to be partially non-verbal. When she gets stressed, she can lose her words. But I don’t have this issue (not unless I’m so seriously stressed that I’m on the edge of a meltdown and about to go over, or I’m being forced to make a decision), so I don’t have as much information about it as I’d like. I have read a number of blog entries that mention it (Ballastexistenz, for one, and Unstrange Mind’s, to provide two examples of bloggers who have brought it up), but I’d like more info, if anyone’s willing to provide it. (Note: This is not a demand. I’m just hoping that some of you who have non-verbal periods would be willing to share info and thoughts with me. Questions are below, as well as details about the character.)
Spontaneous imagination is defined as effortless, surprising and instantaneous. For example, you’re washing the dishes and suddenly have a great new idea for a drawing. It feels like your idea literally “came out of nowhere.” Controlled imagination is defined as a process that is consciously initiated, guided and terminated. For example, you’re washing the dishes and consciously decide to think about how to resolve a conflict with your roommate. You intentionally stay on task, brainstorming ideas and refining until you have an answer, at which time you stop thinking about it.
From Musing’s entry re the TFIS test.
In the comments section, Mados, Musings, and I (mostly Mados and Musings, I just contributed once and read the convo in fascination) ended up getting into a conversation about different modes of thought and types of imagination (which are heavily linked, I believe, thus this post covering both), which provided the inspiration for this post. I actually meant to get this done a week and a half ago, but… yeah.
First of all, can I mention how glad I am to have found the online ASD community, someplace where I can tell people: “I can’t help it,” and be believed and understood. (Not to say my parents don’t believe me, but it’s really hard for them to understand some of this stuff, because of that Communication Chasm.)
So, this is going to be the first in a series of posts “Let’s Talk About”, which will look at some of the things I experience and invite people to join me in discussing them. And our first topic is insomnia, because it’s potentially linked to what happened to me yesterday (see Sensory Overload Fun (Not!)), and because I’ve been trying to deal with it lately.