Category Archives: Autism Spectrum
So, in my last post I talked about mimicking, and how it’s one of the common traits of female autistics that helps mask the fact that we’re autistic. A couple of days ago, my sister (the SLP one, not the teacher) found a post on Facebook that contained a wonderful poster/infographic (see below; designed by Karen Baker, a graphic designer in the UK) about the traits of autism in females, and shared it. Read on, please!
Have you ever found yourself listening to the way you speak, or paying attention to the way you move, and suddenly realize that you’re imitating someone else?
I certainly have, the most recent of which was about five minutes before I started writing this post!
So, VOCM records its shows via SoundCloud, so here’s the recording of my portion of the Morning Show today! 🙂
As mentioned in the bottom of last night’s post, I was interviewed this morning (@7:30) on the VOCM Morning Show by Paddy Daly. I’m hoping to get a recording of the interview, but they’ve already put a summary page up on their site.
About 3 hours ago now I was a participant on a panel done by the Autism Society of Newfoundland and Labrador about Residential Options for those on the autism spectrum – difficulties and possible solutions. It was livestreamed across the province and is available on YouTube (the MUN School of Music channel). It was an excellent panel and a lot of issues and possibilities were discussed. (Note: Forward the time to 8:52 which is when it actually starts.)
Note that tomorrow I will be interviewed by VOCM! 🙂
So, as mentioned in the last post, this post is focused entirely on our panel – First Voice Perspective – The Unspoken Price of Advocacy. Note that the panel was recorded, and I’ll be putting up a link to that recording when it goes live.
The panel consisted of myself, Corey Walker (from BC), Patricia George-Zwicker (from NS), Jackie McMillan (from ON) – all of whom were on the CAPP Advisory Group with me – and Daniel Share-Strom (from ON). There was supposed to be one more, Bruno Hache (from ON), but unfortunately one of his best friends committed suicide on the Monday, so he couldn’t make it.
But before I get to the contents of our panel, I want to share a picture with you – a picture that was taken of pretty much all the attendees of the summit. (It’s not loading into this post, so here!)
Day 2 of the CASDA Summit (Thursday April 19) started out on an interesting note. And by “started out”, I mean 1 am.
I spent the first two hours of the 19th working on the script for my portion of the “First Voice Perspective” panel – finishing writing it out, and then reading it out loud and making edits. (I spent from 1am to 2am doing the latter.) Then I managed to crash – for a while.
The Summit Day 2 session itself also started out on an interesting note.
First day of the CASDA Summit of 2018 (Wednesday April 18). Woke up earlier than I meant to, which was irritating. Read an article from the Ottawa Citizen written by Senator Jim Munson, and got upset about some of the terminology used. (He saw my tweet, and apologized both on Twitter and in person, I definitely have to respect that.)
Got to the summit place (same place as last year, the Shaw Centre, which is attached to the Rideau Centre, which is kitty-corner from the hotel), grabbed breakfast and chatted to various people, including the other ASNL staff and board member there, and then settled up front at the “autistics'” table. 🙂 (AKA the table that most of us sat at, including all of us who were on the “First Voice Perspective” panel.)
Just a warning note before I get into the day’s panels: I was only able to note down certain comments (as opposed to the whole speech of each panelist – thinking of recording certain panels next year for my own info), so I went for the ones that struck me as particularly important in what each of them were saying.
So, I’m doing the autistic advocate panel at the CASDA Leadership Summit in Ottawa this year. (I was part of it last year, as CAPP’s last gasp, but it seems I only wrote stuff down about it on Twitter rather than this blog. But they liked us so much last year that they requested a panel by autistic adults this year too!)
I got into it a bit late, because I hadn’t even realized about the sponsorships available, but in time to join the panel. There are three others who were part of CAPP with me, and there were two other autistic advocates whom I’d heard of but not met. Unfortunately, the friend of one died recently, so he’s had to skip the conference to deal with that. (*my sympathies to him*)
So, long story short, I got in. I’m sharing a room with Patricia (like we did for the Exploring the Spectrum conference in Halifax last year), so that’s all good. (Saving what money we can!)
So, I’ve mentioned Neurodivergent Rebel’s Twitter sessions of #AskingAutistics before, in my post about grief and coping with it. On Saturday (the 13th), she posted about an article on Quartz Media, regarding a robot that the creators say can teach adult autistics to read emotion and facial expression nuances. According to the article, researchers at Heriot-Watt University in Scotland created Alyx. It’s generated a fair amount of irritation among autistics on Twitter, for various reasons.
I’m going to quote from the article, and then give some of my counter-points (some of which I’ve already mentioned on Twitter, but are expanded here). Because honestly, this is not going to work the way the article claims it will. Here’s why (aside from the fact that already a number of autistics are vehemently opposed to it).
It looks like I’m going to be doing a series of rambles about emotion. This one, as per the title, is about feeling left out. I was thinking about other stuff yesterday, and a few memories came up that put me in mind of this particular emotion.
It’s a difficult feeling to quantify and to express, the sense of feeling left out of something. Particularly when you already have trouble with social cues and body language, and so can’t necessarily recognize that whatever you’re feeling left out of has nothing to do with you.
It’s also a very alienating and isolating emotion. Even thinking about talking about it makes me want to cry or melt down. Not exactly a pleasant topic, I’m afraid.
But it’s an important one. Particularly when the people around you don’t mean for you to get the impression that you’re being left out of things.
On Wednesday I posted about anxiety/panic attacks, and what happened to me on Monday. As one might guess, it’s been a topic of conversation among my family since then.
And what keeps coming up (understandably enough, especially considering that no one said anything or reacted to me on Monday) is the question: What can be done to help? What helps while the attack is happening, and what helps after it’s over?
So, I meant to get this up yesterday, but due to things around the topic, I spent yesterday trying to distract myself.
Anxiety (and depression) seem to go hand-in-hand with autism, and no one yet has been able to determine whether they are co-occuring conditions, or whether there’s something about the autistic brain wiring that lends itself to anxiety and depression, or perhaps they’re symptoms of trying to deal with a world not suited to us for years and years on end (which is what I suspect they are, personally, but I’m not a scientist). Could really be any one or any combo of those things.
Basic intro over with, let’s go on to what I want to talk about (and hear from others about) today: Anxiety attacks.
I’ve mentioned before on this blog that I tend to get anxiety attacks when medical issues are being discussed, and they present (for me) like hypoglycemic attacks: lightheadedness, cold sweats, dizziness, shakes, etc. I know one person who “whites out” when they have an anxiety/panic attack, and another who thought they were having a heart attack when they had their first (that they could remember) attack.
The reason this topic came up for me to write about was what happened to me this past Monday.
CW: Mention of dental procedures, not very detailed, but method of injecting freezing stated.
Disclaimer Trigger Warning: Mentions of eugenics, privacy invasion, emotional abuse, and other potentially triggering elements.
So, I’m not on Twitter very often. I follow a fair number of people for various reasons (writing and autism being the two main ones, but not the only ones), but that’s still a lot of reading that has to be done every day, so I tend to only go on occasionally, and mostly read my notifications.
As a result, I wasn’t on when the #BoycottToSiri movement first started. (I’d never even heard of the book – “To Siri, With Love” by Judith Newman – before.) The first I heard of it was a post by a friend of mine referencing the honestly disgraceful characterization of YouTube autistic advocate Amythest Schaber in the book.
(Hint: “Manic Pixie Dream Girl” is a very negative term, used to refer to female characters who are only in things to appeal to the straight male audience. But even “gamine” would not have been an acceptable term to use. Amythest’s work has absolutely nothing to do with their appearance, and like I said above, it is disgraceful that not only did the author describe them that way, but also that the publisher (Harper Collins, BTW – I encourage everyone to express just how insulting and disgraceful this book is to them) allowed it.)
Anyway. Long story (very long story) short, I was poking around to get some information to send to people about this today, and ran into the Storify of a chapter-by-chapter review of To Siri by autistic adult and parent (and writer) @KaelanRhy. I checked with her, and she gave me permission to post that Storify here.
So, the Annual General Meeting of the Autism Society of Newfoundland and Labrador was this morning. A few people who read this blog know that I applied to be considered for the self-advocate’s seat on the board. As you can see by the title, I got in.
The other applicant for the self-advocate seat happens to be someone who is in my Social Club, and we were both told that the board and Scott Crocker (the Executive Director of the ASNL) were so pleased that there were two of us showing definite interest, that whoever didn’t get voted in would probably still be co-opted for things. 🙂 I’m personally hoping that the other applicant applies for one of the available “At Large Representative” positions that will come open next year.
Anyway, aside from giving everyone the good news, I want to add a disclaimer to this blog. I’ve already put it in This Blog and Post Index, but I also want it here, just in case people don’t read (or re-read, in some cases) that post.
Disclaimer: The opinions expressed on this blog, unless explicitly stated, are the personal opinions of the blogger only, and do not reflect the opinions of the ASNL Board of Directors.
The online web version of the interview I had with the CBC St. John’s Morning Show is now up. 🙂
They used two of the pictures I sent them: the selfie I took on Monday (which shows some of my artwork on the wall behind me), and a picture of Imber and I from the year I was diagnosed. So happy they used that pic!
So. The interview I mentioned on Thursday ran yesterday morning in two sections (the first was a teaser/intro), at 7:36 and at 7:43. I recorded it on my computer through the CBC Radio One streaming, and spent half of yesterday picking out the parts that were my interview (the recording was from 5:20 to 9:30 in the morning!), cutting them out, and putting them together to send to my friends and family.
There’s also going to be a web page version, and when I checked with them to ask when it would go up (answer is: Sometime over the next few days, they’ll try to remember to let me know, but I’ll keep checking the site anyway!), I also asked about whether I could post that recording to my blog (wasn’t sure about the legalities of it). The web guy said that there should be no problem, so here it is! The interview is about 10 minutes long or so, and I’ve included about 10 seconds of silence between the teaser and the conversation just to set them apart.
Note: Ms. Holmes accidentally calls me “Tracy” at the end of the teaser (2:11, according to my sister-in-law), but all other uses of my name are correct.
(And why is the default “not getting my name right” always Tracy? If someone’s going to get my name wrong, I’d expect them to call me “Judy”, but it’s always, always “Tracy”!)
So, here it is. Enjoy!
So, last week I put up the post about supporting CAP on Twitter. My mother proceeded to bring up a good point – what if you’re not on Twitter (and don’t want to be)? So here are some things that you can do off Twitter to help show your support.
- They could write to their local MPs, asking for them to clarify their position on CAP.
- If they have Facebook, they could share information about CAP there (the website, videos etc.)
- Write an editorial about the need for a Canadian Autism Partnership to submit to their local newspaper. In fact, if any of you are interested in doing this, we (the CAP team) would be more than happy to help
- Email their friends and family to share information about CAP.
Thank you again, for anything and everything you do to help us get CAP underway.