#ActuallyAutistic #Canadian #CAPP Written Submission

So, I’ve already put up the link to the CAPP survey (reminder: closes July 15th); we also have a written submission form for adult autistics (referred to as “self-advocates” in the documentation). The details are as follows:


We are interested in learning about your views on the importance of a national partnership model in addressing the critical issues facing individuals with autism, their families and those working in the field. We envision CAP bringing together researchers, service providers, and decision-makers in collaboration with people with autism and their families to address the complex issues the autism community faces today.

Specifically, we are looking for your input to the following questions:

  • As a person on the spectrum, what are the big issues that you believe need to be solved?
  • As we design the CAP model, what suggestions do you have for creating a strong national partnership?
  • How do you think CAP could make a difference to you, your family and your community?
  • If you are aware of other collaborative models you think we should explore, please tell us about them.

Once you have composed your responses to these questions, please visit http://www.capproject.ca/index.php/en/written-submission-self-advocates to submit your answers in a fillable PDF.

All information is confidential. The information we collect will provide us with an understanding of the current autism landscape in Canada and what is required to have a successful national partnership model in this country.

If you have additional comments, questions, or information that you would like to share with us, please send them to casdacapproject@gmail.com.

The deadline for fillable PDF submissions is Saturday, July 30th.


Please, please, if you’re an autistic Canadian, please fill this out. We’ve got a large number of responses to the survey so far, but only approximately 4% of them are from actual autistics. The more information we get from autistics, the better our idea of what the situations around Canada are.

Thank you!

🙂 tagÂûght

Canadian Autism Partnership Project Survey

So, today was the St. John’s Round Table meeting for the Canadian Autism Partnership Project (see: Leaving, on a Jet Plane, Nova Scotia, How I Love Thee for starting details). It went quite well, and there was a broad spectrum of people there – social workers, SLPs, clinicians, I think there was at least one OT, ASNL board members, self advocates, parents (and a number who were more than one of those). The discussions went quite well, and just like the first ASD Avisory Group meeting, we actually managed to finish early! 🙂 (Which was a good thing, because the ASNL board had a meeting right after.)

But the important takeaway (aside from the info shared for the Working Group) is the matter of the online survey. For any Canadian involved in the autism community (whether autistic, family member, friend, researcher, specialist, doctor, clinician, member of a society, etc.), we need as many of you as possible to take the survey. The more data we have, the clearer the partnership’s objectives will be – and the more people we can tell the federal government that this will affect. The more people it will affect, the more likely the federal government is to provide the funds to actually create the partnership.

Visit the Canadian Autism Partnership Project to take the survey. It will close July 15th, so the sooner you can visit, the better.

Thank you,

🙂 tagÂûght